I had great intentions of telling you all about my trip to Memphis last week but almost as soon as I got home, I got sick - with the flu! I have not had the flu as an adult and let me just say that it has been a miserable week. I was well enough by Wednesday, however, to go back to Memphis to finally begin the process with the study medication. They are chalky tablets that taste like maple and I will have to chew 4 in the morning and 4 at night with my meals. I am hoping I will soon get used to the texture/taste of them since they will be a part of my diet for the next 5 years. Obviously, I have no idea whether or not I am taking the real medication or a placebo. I won't go back to Memphis for a whole month! :)
Again, I want to ask you to keep our family in your prayers. I told you that my younger sister is being tested next month and I am having a difficult time with that. When I was the first one to go through testing and I was positive, I was okay with that. I felt like if I could just be the only one in the family with it, then that would be okay. And then when my older sister tested positive, I was angry. And it has taken me this long (6 years) to get a little peace with God about it. And now, if my little sister gets it, I am not sure I can explain how pissed and heartbroken I am going to be. It doesn't seem possible that God would allow all 3 of us to get this disease. My mom couldn't handle it if that happened. Obviously, this will be huge for all of us to deal with, so we can use all your prayers.
I have missed keeping up with you all on facebook lately. I gave it up for lent so I have only been on there on Sundays for the past few weeks. I hope everybody is doing well.
Today I am thankful for my sisters.
Living with Huntington's Disease Sucks...for everyone it touches. The way each family & each member deals with it can change daily. I/We are no different...There have been many days when I would rather die than face my guilt. I am convinced that I would not still be here if it were not for the grace of God.
Friday, March 13, 2009
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