Sorry it has been a while but life has been busy... I hope everyone had a Happy Easter. Ours was very nice! The kid's spring break was wonderful. We didn't go anywhere but we had nice weather the first week so we went to a couple of parks for hiking and biking. And Chip went with us to the zoo. It really does make me wish we never had to get up early and never had homework - it really does make me a nicer mom. =) I'm sure it would eventually get old. Ha!!
I went back to Memphis last week to get more drugs. The drug I'm (hopefully) taking is to help cognitive functioning and the dr. said that some patients who have been on it longer are beginning to see a difference. Now I know those people could be on a placebo and it could be "in their head" but it would be nice to think it is working. I also found out something else that is a bit encouraging. If you have been reading this from the beginning, you know that one of our problems has been finding a good neurologist in the Nashville area. Any movement disorder neurologist will treat you, but most of them deal with primarily Parkinsons patients. Last year I even went to Indianapolis because I liked the one there so much and because she had so much experience with HD. I talked to the neurologist at Memphis who is doing the study and asked him if his other patients saw other neurologists. He told me there would me no need for me to have anything other than my primary care dr and my obgyn. That he would take care of everything else for me. Of course I will be seeing him at least every 6 months so he will know me better that any other dr. would. I was excited about this - you have no idea how frustrating it is going to drs. who don't have a clue what HD is. And even better -- it is free because it is part of the study!!
My younger sister did go to have her genetic test done yesterday and now we wait. She will get her results in 3 weeks. I don't need to tell any of you how much our family could use a miracle so keep praying for one!
I want to end this on a funny note...this is what all of you parents of boys have to look forward to...So I get a call last Thursday, while I am at preschool, from the school that I need to come get Cole. Evidently he had been playing with a rolled up piece up paper and seeing how far he could get it to go in his ear. When it got so far that is wouldn't come out anymore, he decided to use a pencil to try and get it out. Which obviously pushed it much further down...so far down that you could no longer see it. The nurse said it was close to his ear drum and she didn't have an instrument skinny and long enough to get it out. So I was going to have to take him to the dr. to get out the paper. When they called me, Cole was crying, he was convinced they were going to have to cut him or put him to sleep to get it out. It was a little funny. An hour and a half later - after trying to scrape it out and flush it out and scrape it out again - it was out. Since then I have been told to be thankful it was only paper. I have heard horrible stories of peas and beans and candy in noses and ears and it's always little boys. That makes me laugh! What would we do without our boys to make us laugh?
Today I am thankful for my sisters...
