Yesterday was my first visit to see a neurologist at UT Memphis to participate in a new drug study. The purpose of yesterday's visit was to evaluate my cognitive and physical abilities and determine where I am in the progression of the disease. This evaluation helps them decide which trials I qualify for. These tests are the same tests I am used to doing every time I participate in any study. The fun part was that they were using spouses as non HD participants so they made Chip go through the same tests - and he got to see why I always feel so dumb! =) After the tests, the doctor decided that I definitely qualified for the 2CARE study. Don't ask me what is stands for because I can't remember right now. This is the Coenzyme Q10 study that I was hoping for. Most studies have been done at 600mg of CoQ10 and shown some "favorable trends toward slowing disease progression" but this study is doing a dose of CoQ10 at 2600mg. The frustrating part is that I have to go back next Wednesday to have my blood taken to be sure that liver and kidneys can handle the high doses of the drug.
I wanted them to do that yesterday but they were already taking blood for that study and they didn't want to draw that much in one day. =( So after next week, I will go back the following week, on the 11th and get the drug. Yesterday was a long day. With traffic, it took us 4 hours to get there. =( Of course, if you know me, I slept the almost the whole way there. We laughed about the fact that even if it might be for a yucky reason, it was pretty nice having a day to ourselves. Over all it was not a bad day. Tonight I am thankful for my husband... my friend.
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