Living with Huntington's Disease Sucks...for everyone it touches. The way each family & each member deals with it can change daily. I/We are no different...There have been many days when I would rather die than face my guilt. I am convinced that I would not still be here if it were not for the grace of God.
Thursday, October 9, 2008
My Sister
It was 6 months after I went through my testing that my oldest sister decided to be tested herself. This is the same sister who had been upset with me for being tested and I'm not exactly sure what changed her mind but she did. She is 7 years older than me and I thought that maybe since she wasn't showing any symptoms yet, that she would be negative. She also went to Vanderbilt to be tested and saw the same neurologist that I did and he told her that at this time he did not see any symptoms in her so we were all very hopeful. My sister did not believe that she had it but she did and she was devastated. And do you know what? So was I. I lost it. I remember being at the alter that Sunday at church and we just sobbed and sobbed. Maybe it was the first I had cried? It did not seem fair that we both had to go through it. I was prepared for it and she wasn't. Up until this point my attitude toward God had been, I'm going to fight this. After finding out about my sister, my attitude changed to being angry at God. I just didn't understand why it had to be both of us. I do have another sister who is one year younger than me. She is not showing any symptoms and she has not been tested yet.
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