Thursday, October 16, 2008
One of my many gripes
I'm afraid that blogging is making me dig out the good and the bad. It is therapeutic but on days like today, I just want to whine/gripe so I hope you'll forgive me. I was talking to my younger sister yesterday about this and I just can't get it off of my mind. You see, up until now, as far as the whole HD thing goes, I am the only one who has done anything. I am the only one who has done any research, found out what medicines/supplements we should be taking. Looked into what trials are going on or what is going on in the HD world. I took the initiative because it is my personality. Everyone in our family comes to me when they have questions about HD. That worries me as my mind is starting to get confused. The things I read no longer make sense like they used to. I have always taken pride in knowing about HD and what is going on but who is going to take over when I can't do that? It is a lot of work! It won't be my mom who is still in denial that me and my sister are progressing. My brother -in-law deals with my sisters symptoms as they come. It won't be him. My poor husband will have enough on his plate having to care for me. My sweet younger sister who wants to ignore it, I guess will have to step up! :) I'm just messing with you! It really makes you realize how much they all want to ignore it. And how much easier it would be if you weren't in the picture. That is why HD patients are 8 times more likely to commit suicide. Not because of themselves, but because they hate being a burden on their families.
Subscribe to:
Post Comments (Atom)
2 comments:
You know what? I think most families have one "go to" person - and it always ends up being one of the "kids" - I know many families, including my own, like that. Because you are PROACTIVE and take the intiative, others begin to rely on you more and more.
I think you are also leaving out one important detail about yourself - you are (and have been at least as long as I have known you), a fighter. You don't take a lot laying down, as they say.
Laura - You're right, I intend to fight as long as I can or as long as I can remember that I'm supposed to. :-) But what I worry about is who will fight for me when I can't fight anymore? Does that make sense?
And to answer your question from yesterday about my relationship with Shelby. Think about how your mom treated you and how you wish she had treated you. And then remember that when you are dealing with Maggie. If she asks you a question that is way over her head, don't just give her a cheesy answer. Tell her that the answer is a little hard to explain and you will explain it when she can understand it. Don't avoid the hard stuff and she will know she can always ask you anything. Tell her the truth even if it it embarasses you and she'll ask you what the f--- word means instead of her friends!!! :-)
I love you Laura. Thank you for all of the encouragement. By the way, how can I talk you into going to the 25th anniversary? Me, Cary, Nicki and Manda are staying overnight? Nita Pita Pata
Post a Comment