Living with Huntington's Disease Sucks...for everyone it touches. The way each family & each member deals with it can change daily. I/We are no different...There have been many days when I would rather die than face my guilt. I am convinced that I would not still be here if it were not for the grace of God.
Monday, October 6, 2008
Thank You
Okay, you guys are sweet! Thank you for your sweet and encouraging words. Just remember that when you feel like all I am doing is complaining. For the most part I am going to keep the really technical stuff out because to be honest, it gets more and more confusing to me. You can google or go to hdsa.org and find out anything you want to about Huntington's Disease. Yes, it is as bad as it sounds but fortunately it progresses slowly. Where am I now? I am still in the early stages since I can still function on my own. Mentally, I have problems with depression, anxiety, panick attacks, focsusing, memory loss - especially short term and organizing. Physically, I am having problems with space (bumping into things), balance,tripping over things, and falling. Yes, for all of you smart a's - I know I was clumsy before so just imagine it even worse! :-) I am tired all the time which frustrates me very much. It keeps me from being able to do the things I want to do with my kids and around my house. Things could be much worse and I am very thankful that they are not! There is a lot I want to rant about but I want to give you a short history lesson fisrt. So bare with me!
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